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The latest from CPActive
The global CP community comes together for the World CP Day Awards
More than 300 submissions from 30-plus countries gathered over 23,000 votes, helping our judges shortlist the most impactful ideas. Last week our global CP community gathered for a virtual event to find out the results of the campaign – and we are thrilled to share that the winner for 2023 is Maria Dalmon with her app ‘Help Connect’. Congratulations Maria! Maria’s idea is the creation of an app would allow people with speech disabilities to effectively communicate their needs to anyone, easing any concerns about being stranded during an emergency situation. “I am excited at the thought of Help Connect being developed and giving me and other people with speech difficulties the confidence to go ‘out and about’ knowing help is available at the push of a button”, said Maria. The judging panel assessed competition ideas for potential impact, reach and marketability, with the main focus on funding an idea that can
What being part of CPActive means
By Maria Dalmon, CPActive Member A few weeks ago, I had the great honour of speaking at a CPActive virtual Town Hall. The event’s topic was “The Future on Technology and Innovation” and was hosted by Riley Saban, a disability tech entrepreneur, using his eye-gaze speech generating technology. My cerebral palsy makes my speech difficult to understand, and so, my words were displayed to all as I spoke through the use of captioning. It was very exciting to speak and tell people how I use technology around my home to help me in my life. You can watch our event highlights here. I have been a client of Cerebral Palsy Alliance for 65 years and live in my own home with my husband, Lindsay. It is my mission, as a woman with cerebral palsy, to educate the public about cerebral palsy, ensuring our individuality and our right to be heard. When meeting
CPActive Champions recognised for their leadership at ICMS panel
Champions Nicholas Lapsley and Meret Hassanen spoke at a Masterclass panel at the International College of Management Sydney on Diversity in Leadership. Led by Dr Trevor Clark, the Undergraduate Dean at ICMS, the panel explored the importance of diversity in leadership and what we can learn from it. Nicholas spoke eloquently on the assumptions that others make around people with disability, the limitations that such assumptions create, and how he is always challenging those. He noted the lack of leaders with disability in organisations, which he is actively working to change alongside other champions and the CP community through CPActive and the Blaze the Trail Campaign. Meret spoke about opportunities, and how she takes every one that is presented to her because it could lead to anything. She shared how her internship at SBS gave her a foot in the door, which led to her current job at ABC as
CPActive gets a shoutout on national TV!
It was great to hear a shoutout to CPActive from Hannah Diviney on national ABC show The Drum last Friday! If you missed it, you can listen to the panel discussion starting at the 15-minute mark by checking out the full recording here. Hannah Diviney is a disability advocate, actress and the Editor-in-Chief of Missing Perspectives, a platform that elevates the voices of diverse storytellers, particularly young women who are often underrepresented in the news industry. When asked about the impact of COVID lockdowns on potential outcomes in the NSW state election, Hannah didn’t hesitate to highlight the work of CPActive and the campaign commitments – or lack thereof – of most political parties. “There’s a collective of young people with cerebral palsy … called CPActive, which has been lobbying for changes in education reform, particularly when it comes to how students with disabilities are treated in the education system
CPActive champions meet with local candidates ahead of the NSW state election
As part of the CPActive Blaze the Trail campaign, CPActive champions organised a ‘Day of Action’ that was held last week at the Allambie Campus. These young trail blazers took it upon themselves to organise local candidates from all parties in the upcoming state election to hear about the lived experience of CP and to commit to build more inclusive school to work pathways for young people with disability. CPActive champions welcomed commitments from local candidates from across different parts of the political spectrum that if elected, they will work with CPActive to make the pathways from school to work more accessible for people with disabilities. Local candidates who attended the Day of Action at CPA Allambie offices and pledged their support were: Toby Williams, Liberal candidate for Wakehurst Michael Regan, Independent candidate Wakehurst Susan Sorensen, Animal Justice Party candidate for Wakehurst These commitments from local candidates come just weeks
New commitments to improve school and work for young people with disabilities
Young people with cerebral palsy in NSW have welcomed NSW Labor’s commitment today that if elected they will introduce specific policies to make the pathways from school to work more accessible for people with disabilities. The CPActive ‘Blaze the Trail’ campaign has been advocating for these reforms for months and disability advocates say that it’s a major win for young people with disabilities in NSW. If you haven’t signed the petition yet – there’s still time to add your name and help other parties come on board! NSW Labor Leader Chris Minns and Shadow Minister for Disability Inclusion Kate Washington announced today that if elected into government, they will: Blaze the Trail campaign spokesperson Tahlia Blanshard said it is a massive win for the campaign. “We have been making our voices loud and clear this election, telling all major parties that it is time to improve our school and employment
What a year!
It’s been a big year for CPActive, with lots of events and the launch of our Blaze the Trail campaign. Three of our Champions- Ben Andrews, Meret Hassanen and Tash Garritty recap what happened in 2022. By Ben Andrews: First full year of CPActive done & dusted. People with a disability face barriers everyday, myself included. Breaking down these barriers is the main ambition of CPActive & their Champions. As someone who’s had to deal with these barriers in the past I know what it’s like for other people facing the same hurdles. For this reason, CPActive have hosted & facilitated a number of events over the past year to help raise the voices of people with cerebral palsy & other related conditions. Even though I haven’t been able to attend some of these events due to work commitments I’ve attended those events that I can fit in with work.
Blaze the Trail: Creating a Better Future
By Marusha Pride Wednesday, 23rd November, was the launch of CPActive’s Blaze the Trail campaign. A world firstcampaign that was design by an incredible group of young people to build better pathways fromschool to work. Fourteen CPActive champions- Sophie Geeves, Eric Barrett, Nicholas Lapsley, EireanWood, Meret Hassanen, Declan Lee (who, unfortunately, could not be there in person), JackCalderan, Jack McCutcheon, Nicole Kozeji, Aaryan Shah, Tahlia Blanshard, Joseph Issa, SashaDansereau, and me, Marusha Pride, launched this campaign at Barangaroo. We were joined by theShadow Minister for Disability, Kate Washington. Our presentation covered three main areas: Provisions for exams at school and University,pathways for teachers with disabilities to enter the teaching workforce, and a statewide initiative tohelp develop professional pathway for students with disability. Our presenters shared theirexperiences in each of these areas. Tahlia kicked off the launch with an introduction and herexperiences with provision in university. We had Nicole and Sophie
Highlights from the World CP Day Awards
On October 14th, CPActive hosted the World Cerebral Palsy Day Awards! It was amazing to come together and celebrate the creativity and innovation of our global community, and it was pretty cool to be joined by some red-carpet superstars. We were joined by Hollywood superstar RJ Mitte, who reflected “If we provide accessibility to everyone, we can grow as a community better – and I think that’s why we’re all here today is to help our community grow stronger.” We also had Riley Saban join us, who is a tech entrepreneur and co-founder of PolySpine. Riley told us “Technology invites all people to create, learn, and communicate, as most technology now has acknowledged the importance of difference by including accessibility options. This allows inclusion and will create the most inclusive society we’ve been part of so far.” And three-time Paralympian Ben Tudhope joined us too! “I’m actually in awe of everyone

Highlights of Youth Lab#3- the power of networking
Our third and final ‘Youth Lab’ was held on 14th September, where young people with cerebral palsy came together to help inform a pilot program that teaches young people with CP around Australia how to use networking to their advantage. NextGen ambassador Meret Hassanen gave insights into how she was able get into the tough media industry through the power of networking. “I was fortunate enough to do an internship with the ABC as part of my degree and I kept in touch with the manager I worked with… I emailed her and asked for feedback. She rang me one day out of the blue and said ‘I have a job going in my team, you should apply’ and that’s how I got my first job with the ABC and all the rest have taken a similar track,” Meret said. Participants shared their excellent tips and tricks of the trade
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