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The latest from CPActive

Podcast: ‘Let’s Get Visible!’ with Hannah Diviney and Tara Moss
Australia is recognised as one of the most inclusive nations in the world, but really, is it?
In this podcast, disability advocate and CPActive Champion Hannah Diviney joins Tara Moss to dig into the details of what it’s like to live with a disability and tackle stereotypes, mental health issues, and barriers to work and education. How do Hannah and Tara overcome the stigmas around disability and women? What does living with a disability mean for our sense of identity? And really, why isn’t there a disabled Disney princess? (Hannah’s working on that.)

Cerebral Conversations podcast: Ahead of the (Learning) Curve with CPActive Champion Lia Sintras
CPActive Champion and Kosciuszko conqueror Lia Sintras has lived with cerebral palsy since she was just a year old, which hasn’t stopped her for a moment. From climbing Mount Kosciuszko to walking into her end of school formal (after over 500 hours of training no less), Lia knows better than most that – as she puts it – “Nothing is impossible. You just need to find people that make it possible.”
In the episode ‘Ahead of the (Learning) Curve, Lia takes us through the challenges and highlights of her school years, the importance of finding champions to back you, and what she’s working on to advocate inclusion for everybody who lives with a disability.

CPActive Champion Hannah Diviney appears on The Project and named Women’s Weekly Awards finalist
CPActive Champion Hannah Diviney is on a mission to change things for women living with a disability. Now a Women’s Weekly Awards finalist with national television appearance under her belt, she’s not slowing down. Hannah made her mark as an activist last year when she petitioned Disney to create a princess with a disability and give representation to millions of girls around the world. Her Change.org petition went viral with over 50,000 signatures so far, and cemented Hannah’s place as a voice for change. She appeared on The Project TV to explain how important representation is for young children finding their sense of identity and self worth. “Growing up in Australia with cerebral palsy is a bit tricky I guess, because disability isn’t really something that people have accepted totally yet,” Hannah said on The Project. “Disney is a massive part of my life… I saw these strong, capable young
Paralympics: Highlights from the Virtual Ticker Tape Parade
Australia’s Paralympic team put in an inspirational performance at the Tokyo 2021 Paralympics. They lifted the hearts of millions of Australians watching at home, struggling through a new wave of the COVID-19 pandemic. At the CPActive Virtual Ticker Tape Parade, we asked young aspiring athletes with cerebral palsy to interview some of their Paralympic heroes returning from the Games: sprinter Evan O’Hanlon, swimmers Matt Levy and Lakeisha Patterson, retired Paralympic champion Katrina Webb-Denis, and two members of our Pararoo football team, Christopher Pyne and Ben Atkins. These Paralympians shared their wisdom on training, resilience, representation and inclusion for people living with disability, the importance of activism, and how to set and smash your goals. You can read a few of their key lessons here. For those who missed out, we’ve put together a video with some of the highlights from the event! Check it out below.
Millions of Reasons: the best of World CP Day
October 6 marked World CP Day, and people around the world took to social media to share Millions of Reasons to celebrate. So many amazing stories and photos were shared from every corner of the world – both by people living with cerebral palsy, and from their nearest and dearest who seized the day to celebrate their loved ones. There are too many to list, so here are just a few of our favourite moments from the day: 1. World CP Day’s incredible compilation of people sharing their reasons to celebrate (guest starring our own CPActive Champion Hannah Diviney!) 2. Samantha Louise’s heart warming story about her daughter Ava and her twin sister “I want to celebrate CP day by showing my twin girls play together, interacting with each other as individuals, they aren’t restricted by their differences when they are having a giggle. “Their physical differences are significant, Avas
Window of Opportunity: parents on diagnosis and treatment of CP
At CPActive’s Window of Opportunity launch event, four parents of children with cerebral palsy bravely told the story of their child’s diagnosis and treatment. Some were able to receive an early diagnosis, giving the family the answers they needed, and their child the chance to receive the early treatment that can drastically improve their health and mobility outcomes as they grow up. Sadly, other parents weren’t so fortunate. Their families endured long months of fear, stress, and desperation as they sensed something was different with their baby, but were forced to seek answers on their own as they tried to help their child. You can read about their stories in detail in our wrap-up article, Stories from the Launch. Watch the highlights from the parent panel at the Window of Opportunity launch below. What you can do The stories of Eden, Kylie, Marelle and Anne prove how early detection can
Window of Opportunity: experts explain the science of early screening
We were privileged to have some of the world’s leading experts on cerebral palsy: Dr Cathy Morgan and Professor Iona Novak from Cerebral Palsy Alliance Research Institute, and Professor Rod Hunt from Murdoch Children’s Research Institute, join us at the launch of the Window of Opportunity campaign. They spoke to our CPActive community to explain the science behind early screening for cerebral palsy, the impact of early treatment for infants, and why Australia doesn’t yet screen babies for CP. “We want to start a [cerebral palsy] screening program for every baby in this country… irrespective of where they live, their postcode, whether they speak our English language or not,” said Dr Morgan. “What we’re hoping to do with this program is put an opportunity into the hands of every parent.” In Australia, cerebral palsy is the most common physical disability in childhood. But while we screen babies for hundreds of
Resilience, community and representation – key lessons from CPA’s Paralympic Ticker Tape Parade
The amazing performance of Australian athletes with cerebral palsy at the Tokyo 2020 Paralympics has inspired a new generation of young children with CP and similar disabilities. To celebrate the return of our Aussie Paralympians, CPA recently held a virtual Paralympic Ticker Tape Parade, pairing aspiring athletes with some of our most successful Paralympians living with CP for an uplifting evening of community and conversation. Culture and community Kicking off the event were Christopher Pyne and Ben Atkins, represent Australia’s Para-football team, the Pararoos. They spoke to up-and-coming CPA athlete Matty Engesser, discussing the special bond that athletes with cerebral palsy have, and the importance of building and connecting our CP community. “You need to find that special thing for a team to succeed, whether it be in football or athletics. With [the Pararoos], the drive, the determination, the spark was already there, it was just a matter of moulding and developing it. When
Window of Opportunity campaign: stories from the launch
Right now in Australia, there’s no standard program for screening babies for CP. That’s why the Window of Opportunity campaign exists: to advocate for a national Baby Movement Screening program for every child born, or BaMS for Bubs.
At the launch event the CPActive community heard from four parents about their child’s journey to diagnosis and treatment. These are their stories.
NDIS independent assessments scrapped
CPActive recognises the long-standing hard work of disability advocates in opposing the NDIS independent assessments and their big win in having the proposal scrapped. In February more than 20 organisations, led by Every Australian Counts, called on the Federal Government to abandon the plan, describing it as box-ticking exercise to cut costs. Disability advocates have for months been warning the independent assessment process was deeply flawed, including media reports of a person living with a disability who requires a wheelchair for mobility being assessed as not needing wheelchair support. The majority of Australians support the NDIS and its aim of placing choice and control with people living with a disability. It is vital any change to the NDIS is evidence-based, co-designed with people living with a disability and does not leave any one worse off. You can read more in this Guardian article here: https://www.theguardian.com/australia-news/2021/jul/09/disability-sector-celebrates-after-coalition-forced-to-scrap-ndis-independent-assessments
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