Uncategorized

Apr, 2022
National Day of Action: 28 April

The NDIS has been a gamechanger for people with cerebral palsy, empowering our community with freedom and choice. But the NDIS is at a crossroads – help us to ensure that the NDIS isn’t forgotten about this election day.

Join Cerebral Palsy Alliance for a fun, empowering day of community action on 28 April on the NSW Central Coast.

You can meet your local Federal election candidates, ask them how they’ll support people with disability and their families, and help make our voices heard.

You can also gather your friends and family, meet other people with lived experience of CP and enjoy a good chat over a cup of tea, and some musical entertainment, grab a lego fun pack and hear from a panel of speakers about their experiences.

Event Details:
DEFEND OUR NDIS: NATIONAL DAY OF ACTION COMMUNITY EVENT
10.00-11.30am. Thursday 28 April
Parkview Room, Central Coast Leagues Club, Gosford
Free event, RSVP here for catering: https://www.eventbrite.com/e/defend-our-ndis-national-day-of-action-community-tickets-310157668937

Help ensure the NDIS isn’t forgotten about on election day.
The CPActive team hopes to see you there!
Don’t live in Gosford or surrounds? There’ll be local events happening all over Australia on 28 April.
Look up an event near you here: https://everyaustraliancounts.com.au/election-events/


Learn more
Central Coast, community, event, ndis
Apr, 2022
Highlights from our 2022 Launch
On 22nd March we had our first town hall for 2022 with some inspiring speakers talking about their priorities for the year ahead. Read their reflections. Be part of it and watch the highlights video now:


Here’s a quick re-cap of what our speakers had to say on the night:

Elly Desmarchelier on the Defend Our NDIS campaign:
“The NDIS… was not built by politicians, it was built by people with disability. That’s the scheme we want, that’s the scheme we are defending.”
“I realised the decisions that politicians make ultimately, as a disabled person, they impact my life more than a person without disability. My life is inherently more political. So I can just ignore that, or I can actually use my voice to have the biggest impact on my life.”
“The Defend Our NDIS campaign is… an opportunity, and it gives us a place in which we can channel that energy and that voice… to be more powerful together.”
Click here to sign the open letter against cuts to the NDIS.
Register for an online community rally here.
Former Paralympian Tamsin Colley on her schooling career and the need for inclusive education:
“At my public high school, I was told that I would either be in the selective stream or receive support. And this was like outrageous, as they seemed like they have never heard of people with disabilities being smart and excelling in school before.”
“For Para-athletes, the Paralympic movement has really helped making young people with disabilities feel included and supported their sporting endeavours. It’s such a shame that school is so behind this.”
You can read more about Tamsin’s story on CPActive.
CPActive Champion Jerusha Mather on dating apps:
“I’ve heard many stories of people with disabilities being ghosted and not treated with respect [on dating apps]. It’s been going on for too long. I would really like to see some change. It is not good to ghost someone or discriminate against someone based on their disabilities… that’s why I started this petition.”
“Just put yourself out there and don’t be afraid… be yourself, be your real self, and don’t be afraid to give it a go because we all want love and we are all deserving of love, and love will come to us at the right time, and someone will love you for who you are.”
Sign Jerusha’s Change.org petition to make big dating apps more inclusive.
Aspiring ParaMatilda Holly Saunders on what she’s learned from team sports:
“Patience, a lot of patience. But especially the friendships that come from all the different people [you work with]. And it’s pretty much like a small little family, which is nice to have. So you always have each other’s backs, no matter what.”
Aspiring ParaMatilda Tahlia Blanshard on the best advice she’s received:
“I think the best advice that I was given, it sounds very cliche, but it was to not give up. I was just told to just keep doing it, no matter what anyone else says. If someone said ‘No, you can’t do that,’ that I should not listen to that person. I should just try my hardest at everything and it didn’t really matter what the result was, as long as I had fun along the way.
“And all the friends that I made are worth more than any trophy.”
We’d love to see you at our next event. Sign up for updates here now.
Learn more
Feb, 2022
Employment project: callout for consultations
The employment rates for people with disability are unacceptably low in Australia. Less than 50% of people aged 15-64 years with disability are employed, compared to 80% of their peers without disability. This gap has not changed for decades.
Various projects, strategies and schemes have been implemented by federal and state governments. But despite this, Australia’s participation rate for people living with disability is on par with developing countries – and it needs to change.
Any strategy for inclusive employment needs to be based on the lived experiences of people with disability. That’s why Cerebral Palsy Alliance is conducting consultations with people living with CP and similar conditions to understand your employment journey.
Would you like to have your say? Email project officer Dula Hettiarachchi at dula.hettiarachchi@cerebralpalsy.org.au to express your interest!
The consultation will include questions about:
• What employment means to you
• Your positive and negative experiences with finding a career
• What are your tips for organisations and companies
• Creating inclusive practices and environments
• Hopes for the future of employment
These consultations will shape CPA’s recommendations for how governments and employers can support people with disability to find and retain a fulfilling and successful career.
If you’d like to participate in this exciting project, please email project officer Dula Hettiarachchi at dula.hettiarachchi@cerebralpalsy.org.au. If you’re not comfortable speaking directly, that’s okay – feel free to send your thoughts in writing!
Learn more
Oct, 2021
Millions of Reasons: the best of World CP Day
October 6 marked World CP Day, and people around the world took to social media to share Millions of Reasons to celebrate.
So many amazing stories and photos were shared from every corner of the world – both by people living with cerebral palsy, and from their nearest and dearest who seized the day to celebrate their loved ones.
There are too many to list, so here are just a few of our favourite moments from the day:
1. World CP Day’s incredible compilation of people sharing their reasons to celebrate (guest starring our own CPActive Champion Hannah Diviney!)

2. Samantha Louise’s heart warming story about her daughter Ava and her twin sister
“I want to celebrate CP day by showing my twin girls play together, interacting with each other as individuals, they aren’t restricted by their differences when they are having a giggle.

“Their physical differences are significant, Avas CP is severe, but they both want to enjoy life. Being non verbal, the best way Ava communicates this young is by laughing so hard at her sisters antics most of the time. It’s heartwarming to watch.

“I am grateful to learn from Ava every day and be given an alternative perspective on life; a tough lesson in life which continues to make me stronger.”

3. Perth-based model, actor and activist Emily Prior
“Emily’s reason – to challenge and change stereotypes people have about disabilities. She wants to see disability in the media, in Film and Television so that kids like her get to see themselves represented. She wants to show that having a disability is not a tragedy. She’s totally proud of who she is!”

4. Former Aussie Paralympian Katrina Webb
“Happy World CP Day!! The world can prosper by celebrating the gift of ‘neuro-diversity’ that Cerebral Palsy brings. Each year, #WorldCPDay encourages people around the world to come together to celebrate and support those living with cerebral palsy. #MillionsofReasons“

5. Mikey ‘wearing and rolling every shade of green’ for fashion label Mighty Able

6. Comedian Rosie Jones treating us to a truly adorable throwback

7. Aaryan Shah, who you might recognise from CPActive’s Virtual Ticker Tape Parade
“Aaryan’s reason for celebrating World Cerebral Palsy day is because he loves being part of a community of diverse individuals all doing great things in unique ways.
Aaryan wants perceptions of people with disabilities to improve and for people to not assume they know all about someone’s condition without asking questions first.”

8. Canadian Prime Minister Justin Trudeau chiming in!

What was your reason to celebrate World CP Day? Share it with the CPActive community in our new Facebook group!
Learn more