Window of Opportunity: parents on diagnosis and treatment of CP
At CPActive’s Window of Opportunity launch event, four parents of children with cerebral palsy bravely told the story of their child’s diagnosis and treatment. Some were able to receive an early diagnosis, giving the family the answers they needed, and their child the chance to receive the early treatment that can drastically improve their health […]
Window of Opportunity: experts explain the science of early screening
We were privileged to have some of the world’s leading experts on cerebral palsy: Dr Cathy Morgan and Professor Iona Novak from Cerebral Palsy Alliance Research Institute, and Professor Rod Hunt from Murdoch Children’s Research Institute, join us at the launch of the Window of Opportunity campaign. They spoke to our CPActive community to explain […]
Resilience, community and representation – key lessons from CPA’s Paralympic Ticker Tape Parade
The amazing performance of Australian athletes with cerebral palsy at the Tokyo 2020 Paralympics has inspired a new generation of young children with CP and similar disabilities. To celebrate the return of our Aussie Paralympians, CPA recently held a virtual Paralympic Ticker Tape Parade, pairing aspiring athletes with some of our most successful Paralympians living […]
Window of Opportunity campaign: stories from the launch
Right now in Australia, there’s no standard program for screening babies for CP. That’s why the Window of Opportunity campaign exists: to advocate for a national Baby Movement Screening program for every child born, or BaMS for Bubs.
At the launch event the CPActive community heard from four parents about their child’s journey to diagnosis and treatment. These are their stories.
NDIS independent assessments scrapped
CPActive recognises the long-standing hard work of disability advocates in opposing the NDIS independent assessments and their big win in having the proposal scrapped. In February more than 20 organisations, led by Every Australian Counts, called on the Federal Government to abandon the plan, describing it as box-ticking exercise to cut costs. Disability advocates have for months been […]
Wrap-up: Activism 101 Skill Share
Our CPActive event ‘Activsm 101’ was a smaller skill share session where three prominent disability activists dropped in to share their wisdom with the CPActive community.
Grassroots campaigner Jerusha Mather, Jean Cotchin from the Every Australian Counts campaign, and Elly Desmarchelier from Women With Disabilities Australia joined us to discuss how they found their passion for activism, their experiences dealing with politicians and decision-makers, why the world needs to hear more voices with lived experience of disability.
Federal budget 2021-22 | What’s changing for the NDIS?
Yesterday the Federal government released its budget, which included another boost to the NDIS as well as new funds for community and support services. Here’s a brief breakdown of what’s new…